Enfrentar la dureza de la enfermedad crónica, retos de la diada: cuidador/persona cuidada
Resumen
Palabras clave
Referencias
Aoun, S., Slatyer, S., Deas, K. & Nekolaichuk, C. (2017). Family Caregiver Participation in Palliative Care Research: Challenging the Myth.” Journal of Pain and Symptom Management, 53(5), 851–61. Recuperado de https://doi.org/10.1016/j.jpainsymman.2016.12.327
Batthyány, K. et al. (2017). El Aporte de las familias y las mujeres a los cuidados no remunerados en salud en Uruguay. Revista Estudos Feministas, 25(1), 187–213. Recuperado de https://doi.org/10.1590/1806-9584.2017v25n1p187
Bierhals, C. et al. (2017). Needs of Family Caregivers in Home Care for Older Adults. Revista Latino-Americana de Enfermagem, 25 e2870. Epub april 06, 2017. Recuperado de https://doi.org/10.1590/1518-8345.1511.2870
Blum, K. & Sherman, D. (2010). Understanding the Experience of Caregivers: A Focus on Transitions. Seminars in Oncology Nursing 26(4), 243–58. Recuperado de https://doi.org/10.1016/j.soncn.2010.08.005
Chaparro, L. (2011). How a Special Caring Bond Is Formed Between the Chronically Ill Patient and the Family Caregiver. Aquichan, 11(1), 7–22. Recuperado de https://doi.org/10.5294/aqui.2011.11.1.1
Daley, R., O’Connor, M., Shirk, S. & Beard, R. (2017). In This Together’ or ‘Going It Alone’: Spousal Dyad Approaches to Alzheimer’s. Journal Of Aging Studies, 40, 57–63. Recuperado de https://doi.org/10.1016/j.jaging.2017.01.003
Finlay, L. (2002). Negotiating the Swamp: The Opportunity and Challenge of Reflexivity in Research Practice. Qualitative Research, 2(2) 209–30. Recuperado de https://doi.org/10.1177/146879410200200205
Gardiner, C. et al. (2016). Methodological Considerations for Researching the Financial Costs of Family Caregiving within a Palliative Care Context. BMJ Supportive & Palliative Care, 6(4), 445–51. Recuperado de https://doi.org/10.1136/bmjspcare-2015-001046
Heidegger, M. (1974). El Ser Y El Tiempo. México: Fondo de Cultura Económica.
Heinonen, K. (2015). Levels of Reduction in van Manen’s Phenomenological Hermeneutic Method: An Empirical Example. Nurse Researcher, 22(5): 20. Recuperado de https://doi.org/10.7748/nr.22.5.20.e1327
Hui, S., Elliott, T., Martin, R. & Uswatte, G. (2011). Family Caregivers. Attributions about Care-Recipient Behaviour: Does Caregiver Relationship Satisfaction Mediate the Attribution-Distress Relationship? British Journal of Health Psychology, 16(3), 642–59. Recuperado de https://doi.org/10.1348/2044-8287.002003
Johnston, C., Wallis, M., Oprescu, F. & Gray, M. (2017). Methodological Considerations Related to Nurse Researchers Using Their Own Experience of a Phenomenon within Phenomenology. Journal of Advanced Nursing, 73(3), 574-84. Recuperado de https://doi.org/10.1111/jan.13198
Kim, H. & Oh, S.M. (2013). Noncommunicable Diseases: Current Status of Major Modifiable Risk Factors in Korea. Journal of Preventive Medicine and Public Health, 46(4), 165–72. Recuperado de https://doi.org/10.3961/jpmph.2013.46.4.165
Kruithof, W., Visser-Meily, M.A. & Post, M. (2012). Positive Caregiving Experiences Are Associated with Life Satisfaction in Spouses of Stroke Survivors. Journal of Stroke and Cerebrovascular Diseases, 21(8), 801–7. Recuperado de https://doi.org/10.1016/j.jstrokecerebrovasdis.2011.04.011
Lee, V. et al. (2016). Managing Multiple Chronic Conditions in Singapore–Exploring the Perspectives and Experiences of Family Caregivers of Patients with Diabetes and End Stage Renal Disease on Haemodialysis. Psychology and Health, 31(10), 1220–36. Recuperado de https://doi.org/10.1080/08870446.2016.1203921
Lethin, C., Rahm Hallberg, I., Karlsson, S. & Janlov, A.C. (2016). Family Caregivers Experiences of Formal Care When Caring for Persons with Dementia through the Process of the Disease. Scandinavian Journal of Caring Sciences, 30(3), 526-34. Recuperado de https://doi.org/10.1111/scs.12275
Liljeroos, M., Agren, S., Jaarsma & Strömberg, A. (2014). Perceived Caring Needs in Patient-Partner Dyads Affected by Heart Failure: A Qualitative Study. Journal Of Clinical Nursing 23(19–20), 2928–38. Recuperado de https://doi.org/10.1111/jocn.12588
Lincoln, Y. & Guba, E. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
Manen, V.M. (2003). Investigación Educativa Y Experiencia Vivida: Ciencia Humana Para Una Pedagogía de La Acción Y La Sensibilidad. Barcelona: Idea Books.
Manen, V.M. (2014). Phenomenology of Practice: Meaning-Giving Methods in Phenomenological Research and Writing. Walnut Creek, CA: Left Coast Press.
Nemati, S., Rassouli, M., Mahnaz, D., Pilkhani, C. & Reza Baghestani, A. (2017). The Spiritual Challenges Faced by Family Caregivers of Patients With Cancer: A Qualitative Study. Holistic nursing practice, 31(2), 110-17. DOI: 10.1097/HNP.0000000000000198.
Newberry, A. et al. (2013). Exploring Spirituality in Family Caregivers of Patients with Primary Malignant Brain Tumors across the Disease Trajectory. Oncology Nursing Forum, 40(3), E119–25. Recuperado de https://doi.org/10.1188/13.ONF.E119-E125
Organización Mundial de la Salud. (2012). Estadísticas Sanitarias Mundiales 2012. Ginebra.
Organización Panamericana de la salud. (2013). Innovative Care for Chronic Conditions: Organizing and Delivering High Quality Care for Chronic Noncommunicable Diseases in the Americas. Washington DC: OMS.
Patton, M. (2002). Qualitative Evaluation Methods and Research Methods. London: Sage.
Ramírez-Perdomo, C.A., Salazar-Parra, Y. & Perdomo-Romero, A.Y. (2017). Quality of life of caregivers of persons with neurological disorder sequels. Revista Científica de la Sociedad Española de Enfermería Neurológica, 45,9-16. Recuperado de https://doi.org/10.1016/j.sedene.2016.12.002
Rha, S.Y. et al. (2015). Caregiving Burden and Health-Promoting Behaviors among the Family Caregivers of Cancer Patients. European Journal of Oncology Nursing, 19(2), 174–81. Recuperado de https://doi.org/10.1016/j.ejon.2014.09.003
Sánchez-Herrera, B., Carrillo-González, G., Barrera-Ortiz, L. & Chaparro-Díaz, L. (2013). The Burden of Care in Instances of Chronic Non-Communicable Disease. Aquichan, 13(2), 247-60. Recuperado de https://doi.org/10.5294/aqui.2013.13.2.10
Sánchez, L. M. & Carrillo, G. (2017). Competency for Homecare of That Dyad Person with Cancer in Chemotherapy and His Caregiver Family. Psicooncologia, 14(1), 137–48. Recuperado de https://doi.org/10.5209/PSIC.55817
Singh, D.K.M. & Ajinkya, S. (2012) Spirituality and Religion in Modern Medicine. Indian Journal of Psychological Medicine, 34(4), 399–402. Recuperado de https://doi.org/10.4103/0253-7176.108234
Smith, J. (2008). Qualitative Psychology: A Practical Guide to Research Methods. Los Angeles, Calif.: SAGE Publications.
Torskenæs, K. et al. (2015). Nurses’ and Caregivers’ Definition of Spirituality from the Christian Perspective: A Comparative Study between Malta and Norway. Journal of Nursing Management, 23(1), 39–53. Recuperado de https://doi.org/10.1111/jonm.12080
Ussher, J., Wong, W. & Perz, J. (2011). A Qualitative Analysis of Changes in Relationship Dynamics and Roles between People with Cancer and Their Primary Informal Carer. Health 15(6), 650–67. Recuperado de https://doi.org/10.1177/1363459310367440
DOI: https://doi.org/10.14198/cuid.2018.52.04
Copyright (c) 2019 Claudia Andrea Ramírez Perdomo, Elsa Chacón Cuellar, Alix Yaneth Perdomo Romero

Este obra está bajo una licencia de Creative Commons Reconocimiento 4.0 Internacional.